Well, Sadie did not clear her 5am draw, but she did clear her 1pm draw, so we are home at last. She was so excited to come home. When we were pulling out, she said "I am so sick of this place". I had them pull another CBC today, and her counts are unfortunately dropping. Her platelets have dropped by thousands within a day, and so have her whites. We will probably be back in for a blood transfusion in a couple of days, but I'm hoping she at least makes it through the weekend. If so, she will go for a finger poke on Monday to see what damage was done by the chemo.
Upon leaving today, we ran into Raven's grandparents and heard some very unfortunate news. Ravens story is very sad. She is 11 years old, and was diagnosed with neuroblastoma. By the time it was caught, she was already in stage four. She has done several treatments, but her cancer is not responding to them. In combination to the solid tumors she has, she also has jelly tumors, which, hence the name, are jelly. They can not be removed, or operated on in any way. She is such a fighter. The first time we met her, was when Sadie was first diagnosed, and as miserable as she was, she fought it with all her strength. We have talked to her and her family a lot, and always saw them in clinic and up on the floor, so when we hadn't seen them in awhile, I thought, Great!!!!!!!! She must be doing good!!!!! Wrong........a month ago they told her grandfather that she had two months left to live. They sent her home on an oral chemo to prolong her life, and morphine for the pain. A couple of days ago, he said that Raven asked him what was going on, and for him to be honest with her. He looked at her and said "you will not be here for Christmas this year". He didn't tell her exactly what the docs told him, for he didn't know how. Today, she asked him if she could go stay at the hospital and get more medicine for the pain, so......the hospital they went. He said he thinks she is scared of the unknown more than anything, and being at the hospital kinda eases that worry. In an earlier post I had commented on some people having so much bad in their lives and very few moments of good. This is Raven and her grandparents. Just before Raven was diagnosed, her mother was murdered by her husband, who was Ravans step father. Ravens Biological father is not around, so this is why she lives with her grandparents. Prior to that, her grandmother was in an accident and is now wheel chair bound. I can not imagine a day in the life of this family. When I hear things like this, is when I question God. I have always prayed for Raven and her family, but many more prayers for them are needed now. We can not stop GODs will, but God can bring them peace. Please pray that he does.
I can't imagine how scared Raven must be. I pray for her and her family.
ReplyDeleteWill Pray for Raven and her family. How heartbreaking..
ReplyDeletePraying for Raven and her family that God will bring them peace. Also always praying for Sadie and your family to have peace and comfort. God Bless you all and this blog you are doing is amazing!! Keep up the fight Sadie!! Xoxoxo
ReplyDeleteGoing through this has been life changing in so many ways. Most of all nothing else seems to matter. Nothing. Cancer the worries and concern consume our everyday. We feel for and worry about the kids and families we've met at the hospital not only because they too are walking the same journey as us, but also a few of them face what we hope and pray to never face. It's hard we've spent alot of time talking and sharing feelings with all of them getting to know them and their story. I've sat and talked with ravens grandpa and he once said, I, you, we all could ask god why? Why me, my family, why these kids?" what did we do to deserve this he said, we may never know why or for what reason but giving up and giving in is not an option he said. He is a very strong person who has been through so much he, raven and there family will be in our prayers.
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